Provisions in HR 3717, Helping Families in Mental Health Crisis Act that help parents get medical information they need to ensure their children follow up on treatment, get to appointments, and more (HIPAA and FERPA)
(Note: HIPAA Handcuffs and FERPA prevent families from knowing what medications kids are on, when next appointments are, what the diagnosis is and other information they need to help their chidren get better. The Helping Families in Mental Health Crisis Act provides exceptions that allow the information to be disclosed if it is needed in order to protect the person with mental illness, family members or others.)
TITLE III—HIPAA AND FERPA CAREGIVERS
SEC. 301. PROMOTING APPROPRIATE TREATMENT FOR MENTALLY ILL INDIVIDUALS BY TREATING THEIR CAREGIVERS AS PERSONAL REP- RESENTATIVES FOR PURPOSES OF HIPAA PRIVACY REGULATIONS.
(a) CAREGIVER ACCESS TO INFORMATION.—In applying section 164.502(g) of title 45, Code of Federal Regulations, to an individual with a serious mental illness who does not provide consent for the disclosure of protected health information to a caregiver of such individual, the caregiver shall be treated by a covered entity as a personal representative (as described under such section 164.502(g)) of such individual with respect to protected health information of such individual when the provider furnishing services to the individual reasonably believes it is necessary for protected health information of the individual to be made available to the caregiver in order to protect the health, safety, or welfare of such individual or the safety of one or more other individuals.
(b) DEFINITIONS.—For purposes of this section:
(1) COVERED ENTITY.—The term ‘‘covered entity’’ has the meaning given such term in section 106.103 of title 45, Code of Federal Regulations.
(2) PROTECTED HEALTH INFORMATION.—The term ‘‘protected health information’’ has the meaning given such term in section 106.103 of title 45, Code of Federal Regulations.
(3) CAREGIVER.—The term ‘‘caregiver’’ means, with respect to an individual with a serious mental illness—
(A) an immediate family member of such individual;
(B) an individual who assumes primary responsibility for providing a basic need of such individual; or
(C) a personal representative of the individual as determined by the law of the State in which such individual resides.
(4) INDIVIDUAL WITH A SERIOUS MENTAL ILNESS.—The term ‘‘individual with a serious mental illness’’ means, with respect to the disclosure to acaregiver of protected health information of an individual, an individual who—
(A) is 18 years of age or older; and
(B) has, within one year before the date of the disclosure, been evaluated, diagnosed, or treated for a mental, behavioral, or emotional disorder that—
(i) is determined by a physician to be of sufficient duration to meet diagnostic criteria specified within the Diagnostic and Statistical Manual of Mental Disorders; and
(ii) results in functional impairment of the individual that substantially interferes with or limits one or more major life activities of the individual.
SEC. 302. CAREGIVERS PERMITTED ACCESS TO CERTAIN EDUCATION RECORDS UNDER FERPA.
Section 444 of the General Education Provisions Act
(20 U.S.C. 1232g) is amended by adding at the end the following new subsection:
‘‘(k) DISCLOSURES TO CAREGIVERS OF THE MENTALLY ILL.—
‘‘(1) IN GENERAL.—Nothing in this Act, the Elementary and Secondary Education Act of 1965, or the Higher Education Act of 1965 shall be construed to prohibit an educational agency or institution from disclosing, to a caregiver of an individual with a serious mental illness who has not explicitly provided consent to the agency or institution for the disclosure of protected health information, an education record of such individual if a physician, psychologist, or other recognized mental health professional or paraprofessional acting in his or her professional or paraprofessional capacity, or assisting in that capacity reasonably believes such disclosure to the caregiver is necessary to protect the health, safety, or welfare of such individual or the safety of one or more other individuals.
‘‘(2) DEFINITIONS.—In this subsection:
‘‘(A) CAREGIVER.—The term ‘caregiver’
means, with respect to an individual with a serious mental illness, a family member or immediate past legal guardian who assumes a primary responsibility for providing a basic need of such individual (such as a family member or past legal guardian of the individual who has assumed the responsibility of co-signing a loan with the individual).
‘‘(B) EDUCATION RECORD.—Notwithstanding subsection (a)(4)(B), the term ‘education record’ shall include a record describedin clause (iv) of such subsection.
‘‘(C) INDIVIDUAL WITH A SERIOUS MENTAL ILLNESS.
—The term ‘individual with a serious mental illness’ means, with respect to the disclosure to a caregiver of protected health information of an individual, an individual who—
‘‘(i) is 18 years of age or older; and
‘‘(ii) has, within one year before the date of the disclosure, been evaluated, diagnosed, or treated for a mental, behavioral, or emotional disorder that—
‘‘(I) is determined by a physician to be of sufficient duration to meet diagnostic criteria specified within the Diagnostic and Statistical Manual of Mental Disorders; and
‘‘(II) results in functional impairment of the individual that substantially interferes with or limits one or more major life activities of the individual.’’